Nystagmus is a complex eye condition characterised by involuntary eye movements. There is a network group called The Nystagmus Network which is a UK based charity set-up to support people affected by the condition and lead research into finding treatments. Moorfields also conduct reasech into Nystagmus and help support funding through Moorfields Eye Charity and The Nystagmus Network.
The 2018 Nystagmus Awareness Day will be held in the summer for the first time, on Wednesday 20 June. The few days either side will be known as ‘wobbly week’.
To mark this change and encourage as much participation as possible, the charity will be raising awareness of nystagmus under the banner ‘nystagmus in the open’, encouraging everyone to make the most of the time of year by getting outside to have fun together and fundraise for the charity.
There will be barbecues, garden open days, sponsored cycle rides, fun sports days and lots more to ensure that everyone can find something to enjoy.
Sue Ricketts, The Nystagmus Network’s Information and Development Manager, will be opening her tiny Lincolnshire garden to the public on Sunday 24 June as part of ‘nystagmus in the open’. Sue said:
“I look forward to welcoming as many friends and neighbours as possible into my garden for Nystagmus Awareness Day. It will mean there are a few more people who know about nystagmus and where to find support and information.”
In the lead up to the big day, the charity is running its ‘how amazing are you?’ campaign, where they will be sharing stories of adults and children who have achieved great things despite having nystagmus, or maybe even because they do. Anyone who has nystagmus can take part, so please see the Nystagmus Awareness Day page of the charity’s website for details.
Nystagmus Network Chairman, Richard Wilson OBE, said: “We are very excited about the new date. I have a feeling this is going to be one of the biggest Nystagmus Awareness Days ever.”
For more information, please contact: Sue Ricketts, at Nystagmus Network
Tel: 01427 718093
The Nystagmus Network is a registered charity in England and Wales, number 803440