£2,300 raised for Nance Horan Syndrome

On Tuesday 10 January 2017, Moorfields Eye Charity was honoured to be invited to a celebratory dinner for Ian Turner, following his remarkable fundraising of £2,300 for the Richard Desmond Children's Eye Centre at Moorfields Eye Hospital. Ian raised money to support his grandson Sidney, who was born with a condition known as Nance Horan Syndrome - a genetic condition which causes blindness and Autism. Sidney has had numerous operations at Moorfield's and Great Ormond Street hospitals and will continue to do so. He is registered blind and has special needs. Ian said: "He is a very happy little boy and a joy to everyone he meets. His mother and father, like all parents of disabled children, need a lot of support but just like Sidney, they are very brave and courageous. Sidney could have no better parents.  Moorfield's is wonderful to them and care so much for our Sidney."

To fundraise for Moorfields, Ian did an incredible four mile route in his manual wheelchair on Saturday  22  October 2016. This took him from his home in Pagham to the Rotary Wishing Well on Bognor Regis seafront. He was accompanied by members of the Rotary club for safety and support, together with his assistance dog Glen, who is a retired working sheepdog.

Ian said: "I want to do this for the bravery that my grandson and his parents show . Since Sidney was born, his Grandad, Nannie, Carol and I have watched his Mum and Dad, Dave and Jill, try and guide Sidney to have as normal life as possible with their love and devotion. Everyone who knows them marvels at how they have made such a happy brave little boy. On behalf of us all we thank you and this is for all the children who have to be looked after at Moorfield's by so many dedicated and wonderful people, including Mr Brooks, Sidney's consultant, who has been able to save some sight for Sidney. He and all the staff need our support."

This incredible story about Sidney's bravery was picked up by local radio station Spirit FM and Sidney was awarded their 2016 bravery award. Sidney and his parents were invited to a special evening to celebrate his award. Spirit FM also broadcasted Ian's fundraising event Live on air as it happened, which helped him raise this fantastic amount of money.  Following on from the success of this event Ian is now planning another fundraising event in May and we will be there to support him anyway we can.

You can still donate to Ian’s JustGiving page https://www.justgiving.com/fundraising/Ian-Turner12 and read even more about his amazing story. 

If you would like to do a fundraising event like Ian please do get in contact with Moorfields Eye Charity so we can help you.