Moorfields Eye Hospital’s Young People’s Advisory Group (eyeYPAG), supported by the charity, has received the Patient and Public Involvement and Engagement (PPIE) award which was presented by NIHR Moorfields Biomedical Research Centre.

Until 2019, there was no young people’s advisory group like this in the United Kingdom for children with eye or eyesight problems. So, in early 2019 Moorfields set up it’s eyeYPAG for young people to work with researchers exploring eye conditions and treatments. It is supported by the Moorfields Biomedical Research Centre, Moorfields Eye Charity and Santen. 

This group of 13 young people (aged between 8 and 17) meet around four times a year (currently online). They learn about research and work with researchers to inform eye conditions and treatments at all stages of the research process.

EyeYPAG, is now part of the GenerationR alliance of YPAGs in England and the eYPAGnet consortium of European YPAGs as well as the international iCAN network.

We’re delighted the groups hard work has been recognised by the NIHR Moorfields Biomedical Research Centre.

We are so excited that the eyeYPAG won this award! We’ve had a great first year – learning together and with researchers about how best to involve young people in eye and vision research. We’re also currently learning a lot about inclusive involvement online during COVID19. The group is going from strength to strength and the award has really given us a boost for the next stage of our journey.

Louca Mai, strategic lead for young people’s advisory group

To find out more about eye-YPAG and the group’s journey so far, please visit the GenerationR website. You can find more information about the group and read blog posts by young people about eyeYPAG meetings.